Thursday, December 10, 2009

From Twitter 12-09-2009



  • 00:39:58: "Greg Matthews, Humana: future of health brands and Social Media" (via @roskadigital @jbselz @ericbrody): http://tr.im/H5EL #fdasm
  • 08:45:33: MUST READ: New CAREGIVER STUDY (PDF) from AARP reveals 29% of US adult population (65.7 million people) are caregivers: http://tr.im/H7D5
  • 08:53:42: CAREGIVER STUDY: 53% of caregivers used Web 2 find caregiving info-78% of these 2 find condition/treatment info http://tr.im/H7D5 #fdasm
  • 08:58:02: Caregiver Math: 78% (condition/treatment info search) of 53% (use Web) of 29% (US caregivers)= 27 mil adults. Huge. http://tr.im/H7D5 #fdasm
  • 09:11:44: Creator, critic or collector? Forrester's SOCIAL TECHNOGRAPHICS Profile Engine now updated w/2009 data: http://tr.im/H7LN (via @Ideagoras)
  • 09:14:26: Fantastic! Thank you! RT @pfanderson: #FDASM Videos YouTube PLAYLIST http://tr.im/H7NA
  • 09:18:06: Agree! @pfanderson: The FDA should have created playlist of INDIVIDUAL videos from #fdasm hearing organized by day/speaker http://tr.im/H7NA
  • 09:35:50: New post from @jonmrich "Monitoring Adverse Events in Social Media for Pharma’s Biggest Brands": http://tr.im/H7Uk #fdasm
  • 09:45:58: @jonmrich & @MelissaKDavies explore specific pharma brands 2 undrstnd if monitoring 4 AEs in SM is a hopeless task http://tr.im/H7Uk #fdasm
  • 10:03:51: Listening 2 Insights & Perspectives re: #FDASM w/Jonathan Richman (@jonmrich) & Lilly's Mel Halkyard (melhalkyard) ePharma Summit webinar
  • 10:07:22: Anyone using a specific hashtag for the ePharma Summit webinar going on now? #epharmafda ? #epharmawebinar ? Just pick one?
  • 10:08:39: #ePharmaFDA: @jonmrich: the session on Adverse Event reporting received the most attention @ #fdasm publich hearings
  • 10:09:05: #ePharmaFDA: What should manufacturers be responsible for? #fdasm
  • 10:10:07: #ePharmaFDA: @jonmrich: Is company responsible for sites you create and control, or everything online? #fdasm
  • 10:11:23: #ePharma Webinar: @jonmrich: If, for example, you edit an entry on wikipedia once, are you responsible in perpetuity? #fdasm
  • 10:12:32: "#ePharm" Webinar -- will be using Shwen's suggestion for the rest of the call. #epharm #fdasm #hcsm
  • 10:13:06: ePharm Question: is there one specific Q that you hope is answered when FDA releases guidance? #fdasm
  • 10:14:15: #ePharma Webinar: @melhalkyard: We'd like to hear clarity on WHAT we are responsible for exactly -- for ex, not the whole web! #fdasm
  • 10:15:26: #ePharma Webinar: @jonmrich: re: AE reporting & FDA's MedWatch form. No incentive for consumer to fill out this form. #fdasm
  • 10:16:08: #ePharm Webinar: @jonmrich: we need clarification on what exactly is a "reportable adverse event" for ex, is twitter handle enough? #fdasm
  • 10:17:10: #ePharm Webinar: @jonmrich: referencing his great blog post from today re: AEs: check it out: http://tr.im/H7Uk #fdasm
  • 10:19:13: #ePharm Webinar: @melhalkyard: Despite data showing only 1/500 AEs meet all 4 criteria, we might be responsible 4 reporting more #fdasm
  • 10:22:56: #ePharm Webinar (live now!): @jonmrich: Risk turning pharma cos into private investigators if criteria for AE reporting not reasonable Fdasm
  • 10:24:10: #ePharm Webinar (live now!): @melhalkyard: until now, it's abt the message, not the channel. Now, that clearly seems to have shifted #fdasm
  • 10:24:53: #ePharm Webinar (live now!): @melhalkyard is referring to the "intergalactic task force" :) #fdasm
  • 10:25:51: #ePharm Webinar (live now!): @melhalkyard: From what i understand, everyone that asked to present at hearings was given opp #fdasm
  • 10:26:31: #ePharm Webinar (live now!): @melhalkyard: If there's compelling data that people can provide, that would be useful to FDA #fdasm
  • 10:28:07: #ePharm If you have questions for the FDA re: "next steps", don't forget to submit here: http://tr.im/GDXB #fdasm
  • 10:28:46: #ePharm Webinar Question (live now!): What can companies do today in light of fact there is no guidance? #fdasm
  • 10:30:12: #ePharm Webinar (live now!): @melhalkyard: only when u understand WHAT people are talking abt online, can u consider possibilities #fdasm
  • 10:31:18: #ePharm Webinar Question (live now!): Thoughts abt Social Media for clinical trial recruitment? #fdasm
  • 10:32:12: #ePharm Webinar (live now!): @jonmrich: Novartis has a twitter accnt for clinical trial recruitment: @NovartisTrials #fdasm
  • 10:33:01: #ePharm Webinar Question (live now!): Where there any presentations about e-rep programs at the hearings? #fdasm
  • 10:33:46: #ePharm Webinar Question (live now!): Cool! @jonmrich, thanks for the www.fdasm.com plug! #fdasm
  • 10:34:27: #ePharm Webinar (live now!): @melhalkyard: Lion's share of conversation at hearings were related to consumers #fdasm
  • 10:35:32: WWW.FDASM.COM -- links to all the info you need regarding FDA & Public Hearings. #fdasm #epharm #hcsm
  • 10:36:27: #ePharm Webinar ending ... link to archived version coming soon, and will be available on fdasm.com. Great job @jonmrich & @melhalkyard!
  • 10:38:10: Yes, FDA/CDC savvy when it comes to communicating w/consumers, but have not leveraged the tools for purposes of comm w/#fdasm stakeholders
  • 10:47:42: Future note to all folks hosting webinars: Select, Publish & Publicize a simple & unique HASHTAG for your event. #fdasm #hcsm #epharm
  • 10:52:47: Everyone knows this, right? Monday Google launched "live real-time search", includes twitter. For exmp, fdasm: http://tr.im/H8mi #fdasm
  • 11:10:21: GREAT Post by @jonmrich re: AE reporting in Social Media now w/7 key takeaways: http://tr.im/H7Uk #fdasm
  • 11:20:18: @ddwebster hmmm. wasn't bob's article originally posted on 11/20? Is this different? http://tr.im/H8y9
  • 13:22:20: Great! RT @SusannahFox: But stay tuned: @Pew_Internet will have our own #caregiver study out soon (yes, including social media use) #fdaSM
  • 13:23:02: You are welcome! RT @treatheadlice: Thank you @skypen for providing content like this Google study @ fdasm.com http://bit.ly/4drCJ4 #fdasm
  • 13:28:26: SPECIAL THANK YOU 2 @jonmrich @eyeonfda @pharmaguy @whydotpharma @wendyblackburn 4 being "Creators" & giving us new stuff 2 read this week!
  • 13:33:29: @gfry re: Isn't every patient & caregiver an e-patient? I wish we cld suddenly jump into twitter-chat-mode & discuss this in >140 characters
  • 14:46:53: @gfry alright, give me a few minutes.
  • 14:59:28: @gfry Let's try this so others can join too: http://www.fdasm.com/chat/ #fdasm chat
  • 15:01:16: @gfry : let me know when you jump in -- just pick a screen name and u should see me.
  • 15:05:02: @ePatientDave @susannahfox: u r welcome 2 join @gfry & I 2 discuss patients, caregivers, e-patients-why the difference? www.fdasm.com/chat/
  • 15:14:25: @alexdcRx Alex, so you're "AlexdcRx" now? Weren't you @AlexDC before? You have 18,000 followers w/that accnt -- that's mighty impressive!
  • 15:25:39: @alexdcRx : aha! I look forward 2 seeing ur tweets. I'm sure u already follow all these gr8 folks: http://www.ignitelabs.com/pharmatweeps/


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